http://www.oiwiki.info/ 2008-11-20T15:47:28-08:00 http://www.oiwiki.info/ http://www.oiwiki.info/lib/images/favicon.ico text/html 2008-11-02T18:01:41-08:00 http://www.oiwiki.info/doku.php?id=shopping&rev=1225677701&do=diff What shopping tips do you have for others with OI? We found that the older lines of gymboree worked well for our child when he was young. They generally snapped all the way open and ran a little shorter or had roll up cuffs so they fit him better than other clothes. text/html 2008-09-15T09:56:12-08:00 http://www.oiwiki.info/doku.php?id=educating_school_administrators_nurses_and_teachers&rev=1221497772&do=diff My daughter is in 11th grade, 16 years old, with Mild/Moderate Type 1 OI. What I have done each beginning of the school year, within the first 7 days, is have a meeting with EVERY teacher, 504 coordinator, nurse, guidance counselor, principal/or assitant principal. At the meeting I distribute information from the OI Foundation website as well as information from the Shriner's Hospital in Montreal. The Shriner's has a published book on OI and a wonderful research team as resources. Also, I inc… text/html 2008-08-08T12:49:13-08:00 http://www.oiwiki.info/doku.php?id=recreational_activities&rev=1218224953&do=diff My son and daughter both swim several times a week. It is good at strengthening and recovering from surgery or fractures but also we just make it fun. My daughter is 5 and she loves ballet and tap dancing. Both have done therapeutic horseback riding which increased their spinal bone density almost as much as Pamidronate did. text/html 2008-07-24T16:34:03-08:00 http://www.oiwiki.info/doku.php?id=equipment_for_infants_and_toddlers_car_seats_strollers_bath&rev=1216942443&do=diff Are there any types of equipment that were a great find for a child with OI? Have you had any bad experiences with any? We could not have lived without the Peg Pergo Prima Pappa high chair. It reclines to many different angles, it has a 5 point harness, it is on wheels. I even used it as a stroller/wheelchair at times. Jake is now 8 and we still use it everyday! Well worth the money! text/html 2008-07-20T18:56:20-08:00 http://www.oiwiki.info/doku.php?id=high_school&rev=1216605380&do=diff What should the parent of a high school age child with OI know? If you are in high school, what tips can you give others? Let the child be as independent as possible. Encourage the child to speak up and ask for what is needed (elevator key, special desk or chair, extra set of books at home, multiple lockers or special location of lockers). text/html 2008-06-27T06:34:12-08:00 http://www.oiwiki.info/doku.php?id=college&rev=1214573652&do=diff What challenges related to your OI did you encounter in college and how did you overcome them? I was a Nursing major and was told from the start by my professors that I could not do it because of my OI. I did not let it bother me and I went full steam ahead. Unfortunately the summer before my junior year I had surgery on a herniated disc in my back. The semester that followed, they got me. They put me through the worst time of my life and I ended my semester with a 98% on my final and told the… text/html 2008-05-27T12:38:48-08:00 http://www.oiwiki.info/doku.php?id=cars_and_other_vehicles&rev=1211917128&do=diff What obstacles did you encounter while getting modifications to your vehicle? Have you had a particularly good or bad experience? What should anyone exploring the option of buying or modifying a vehicle know? ---------- Go to www.gmmobility.com for information on vehicles and modifications. Also there are many options not just vans for people with OI. -- Neeru Sharma OI Board Member text/html 2008-05-27T12:35:52-08:00 http://www.oiwiki.info/doku.php?id=careers&rev=1211916952&do=diff What is your profession and what challenges or successes have you experienced related to your OI? Do you have any tips or advice for others entering the workforce? ---------- Career choices are important by Neeru Sharma --- OI Board Member and OI Type III Graduation is a right of passage for many high school and college students this time of year. For those students, this exciting time marks a terrific achievement and an opportunity to really think about career choices. Making the choice about… text/html 2008-05-15T11:12:40-08:00 http://www.oiwiki.info/doku.php?id=handy_gadgets&rev=1210875160&do=diff Have you found, or invented, any handy gadgets to help you in your day-to-day activities around the house? I have found that “picker uppers”/“Grabbers” are very handy for a person with OI who wants to be able to do stuff independantly whether it be in their house or even within their bedroom. It has been a great assistant to me over the past year and I can't imagine living without it. text/html 2008-04-18T07:20:19-08:00 http://www.oiwiki.info/doku.php?id=504_and_iep_plans&rev=1208528419&do=diff What resources were most helpful in completing your 504 or IEP? What obstacles did you encounter that others should be aware of? Alyssa has an IEP due mostly to her medical problems. She will not talk in school due to anxiety. The school system is also aware that she does have OI. When she was about 6 months old, she had a minor skull fracture and hematoma (swelling of blood between the skull and the skin). She is also qualified under TBI (tramatic brain injury), which I am not sure if I wa…